Useful Info

ASSIOCIATIONS AND SERVICES.

Down's Syndrome Association

Tel - 0845 230 0372

www.downs-syndrome.org.uk

Down syndrome Educational Trust

Tel - 2392855330

www.downsed.org

Downsyndrome OK covering southern England

www.downssyndromeOK.org.uk

Downs Syndrome heart group

www.dhg.org.uk

Worthing Mencap

Tel - 01903-206708

Buddy's café

Tel - 01903 263307

Worthing Portage service -home visiting educational service for children with additional support needs

Tel - 01903-242558

Face to face- one to one befriending service for parents with a child with special needs

Tel - 07804 529903

local - 01903-504077

www.facetofacesurrysussex.org.uk

ICIS_West Sussex Independent Combined information service

The disability rights commissions

Tel - o800 859929

www.drc-gb.org

Contact a family- information and network of local support groups.

www.cafamily.org.uk

Parents-Make yourselves heard forum-for parents of children with additional needs in west Sussex

Tel - 01243 752158

Wellspring -information site and newsletter.

www.wellspringwestsussex.org.uk

Home start-Supporting families in the local communities

Tel - 01903 236916

Parent Partnership-offers impartial advice to parents of children with special educational needs in west Sussex.

Tel - 0845 075 1008

West Sussex carers liaison service Worthing

Tel - 01903 528600

mid Sussex

Tel - 01293 553395.

www.careswsx.org.uk

Symbol-uk speech therapy group, shoreham , for information ring St.John Trundle

Tel - 01903  813882

AMAZE useful site for those in Brighton area

Tel - 01273 772289

www.amazebrighton.org.uk 

Educational Psychology service,Worthing

Tel - 01903 839308

Crossroads special needs babysitting service

Tel - 01903-237774

Wheelchair services, provides large buggies

Tel - 01903-846500

Free nappies service (for the over 3's) you need to be referred by your health visitor.   Ring the continence service for more information (Worthing area)

Tel - 01903-846521

Children's centre, Worthing Hosp

Tel - 01903-286706   

Special schools  

Camelia Botnar-special needs nursery 0-5years

Tel - 01903-504077  

Oak grove (seniors)

Tel - 01903-708870.

Herons dale (primary)

Tel - 01273-596904

Palatine (primary)

Tel - 01903-242835

Clubs, sports and activities

Activenture-outdoor activity holidays in east Sussex for kids (8-18) with s.needs

Tel - 01342 828215

 

Horse-riding for kids with s.needs at Ferring country centre

Tel - 01903 245078.

Adur special needs project (5-23) holiday and weekend activities in shoreham

Tel - 0127 441866.  

Kangaroos soft-play for kids with s.needs,Tues east Grinstead

Tel - 01342 714508

Ashdown- Saturday club for kids 5-12 with s.needs and weds night for kids 12+

Tel - 01903 528600

Chanctonbury summer play-scheme for kids with s.needs age 4-19

Tel - 01903 203253(book by April)

SNAPPS- special needs support (all ages) sea ford

Tel - 01323 899662.

SNAP_ special needs toddler group, sure start Littlehampton

Tel - 01903 736626

SNAPS- special needs toddler group St Matthews Church Worthing, Friday mornings. Tel - 01903 236909.

Dolphin's swimming club- littlehampton

Tel - 01903 726531    

MXT swimming school-special needs classes in steying

Tel - 01903 532765

Henry house hydrotherapy

Tel -  01903 232875

Seagull's special football clubs,

Website   seagulls -specials.org.uk

Tel - 07919 051848 or

Tel - 07803 902044    

Shine theatre group- age 5-19

Tel - 01273 832855

www.shinetheatregroup.co.uk

Guide association s.needs adviser

Tel -  01903 234810

Grants and benefits

Disability living allowance and carers allowance info

www.direct.gov.uk

Motability cars     

www.motability.co.uk

The family fund- provides grants for children with s.needs based on the families needs, things like toys, driving lessons, holidays, washing machines etc, income needs to be less than £23.000,

www.familyfund.org.uk  

Tel - 0845 1304542

Cerebra- grants to offer assistants to improve the quality of life for kids with s.needs.

Tel - 01267 244216   

cerebra.org.uk

Children today charitable trust -grants for things like special trikes.

Tel - 01244 335622

www.children-today.org.uk 

The Caudwell trust -donations of specialized equipment and holidays

Tel - 0845 3001348

www.caudwellcharity.com

Action for kids- provides equipment like trikes

www.actionforkids.org  

Transport and days out

Rail -pass -

www.disabled persons -railcard.co.uk

Bus pass

Tel - 01903 239999 or Tel - 01903-221292

Or for Adur district

Tel - 01273 263399

Cinemas pass

Tel - 0845 1231292

Reductions at attractions, for carer/parent and disabled child.

Drusillas  carer/parent £11.75 (normally £13.75) child £11.75(£1 Off normal price)

Sea life centre Brighton- carer/parent free child£7.50 (£1.25 0ff)

Arundel castle-wheelchair user free, carer/parent-£11(save £2)   child £6 (save £1.50) lifts to upper floors, but second lift very small.

Fishers Farm- off peak-£ 7.50 for carer and child (normally £10.25 and £9.25)

Peak season £ 8.75 each (£11.75 and £10.75 full price)

Thorpe park- up to two carers and a child £18 each (normally £26 and £19) bring proof and you get a blue band which allows the child and two carers to avoid queues to rides.

Marwell Z00- Carer- free (Normally £14.50)   child £8.00 (normally 10.50) bring some proof, like DLA Letter.

Lego-land- carer -free (adult normally£34.26 or £31.00 pre-booked)  children are full  price-£23.00     take proof like DLA Letter, and if you explain that your  child would find long queues difficult, you get a stamp for them and 3 others in party to avoid queues to rides.

 

All Disney parks- letter from a doctor will get you a pass that you get when you arrive and means you don't have to wait in line for any rides or shows, for up to 6 people in your party, including the child with the disability.

If you have any useful addresses you could add to this list, please e-mail lydiaktori@hotmail.com.  Thanks.